1. Adopt an integrated, outcomes-focused and patient-centred approach to long-term HIV care
People living with HIV require access to a range of health services beyond just their HIV treatment. This includes services for: prevention, treatment and management of comorbidities; mental health and neurocognitive impairment; and advice and support in relation to sexual and reproductive health.
The additional recommendations below supplement and provide further detail:
- Put comorbidity prevention, treatment and management at the centre of long-term HIV care
- Coordinate outcomes-focused care delivery using a personalised care plan
- Integrate services for mental health and neurocognitive impairment
- Ensure an ongoing focus on sexual and reproductive health
- Increase systematic participation of PLHIV in decisions about their care
2. Expand national monitoring of long-term HIV care and outcomes
Current monitoring efforts should be expanded to reflect the reality of HIV as a long-term condition. Improved monitoring would enable assessment of national progress over time, and analysis of within country variation.
3. Fund cohort studies to provide information on the long-term health of people living with HIV
The European Union should recommit to providing stable funding to enable future collaboration and establish cohorts/databases in European countries where none currently exist.
4. Combat stigma and discrimination within health systems
Training and education of healthcare staff should be a priority, both in order to raise awareness of stigma and discrimination within healthcare settings, and to help combat the underlying attitudes that give rise to it.
5. Upscale involvement of the HIV community in priority setting at country level
A key role should be played by HIV community organisations, drawing upon their local knowledge, in working with national policy-makers to identify and agree priorities for action.