Introducing HIV Outcomes Germany

DEUTSCH | ENGLISH

HIV Outcomes Germany consists of the following members (not yet constituted):

  • Jens Ahrens, Deutsches Expertennetzwerk HIV/Hepatitis e.V.
  • Jochen Jakobs, ViiV Healthcare
  • Dr. Sebastian Noe, MVZ Karlsplatz München
  • Annette Piecha, Deutsches Expertennetzwerk HIV/Hepatitis e.V.
  • Robin Rüsenberg, dagnä e.V.
  • Prof. Dr. Hendrik Streeck, UK Bonn
  • Daniel Schaffer, Gilead Sciences
  • Dr. Roger Vogelmann, Mannheimer Onkologie Praxis

Activities & Milestones

Since its launch in 2020, HIV Outcomes Germany brings together medical professionals, patient organisations, researchers and industry to improve the health-related quality of life of people living with HIV in Germany. The initiative raises awareness and advocates for policy change in five key areas: Stigma and discrimination, testing and diagnosis, long-term health and aging, digitalization as well as mental health. The ultimate goal is the implementation of the recommendations and vision of HIV Outcomes Europe in Germany.


December 2022

HIV Outcomes Germany, together with a number of associations, published a plea directed at the German government on the occasion of the 2022 World AIDS Day. The topics of the joint statement are the national HIV strategy and the UNAIDS 95-95-95 targets, which Germany is in danger of missing. As the national HIV strategy enters its halftime in 2023, the goal is to encourage the German government to evaluate and sharpen its measures to stop HIV/AIDS.


October 2022

HIV Outcomes Germany prepared and sent out a position paper on the nationwide provision of PrEP. In particular, the position paper addresses extrabudgetary reimbursement, PrEP coverage in rural areas, and coverage of all key groups aside from Men who have Sex with Men (MSM). 


July 2022

HIV Outcomes Germany organized a workshop where members set the strategy for the next year and a half. The focus of the workshop was HIV Outcomes Germany’s roadmap for 2023. The next year will be particularly interesting because the national HIV strategy is entering its halftime and the government is planning new legislation concerning prevention. HIV Outcomes Germany wants to be the key contact for this and contribute its in-depth expertise.


April-June 2022

HIV Outcomes Germany has put the partnership between its members on a strong foundation: Through a joint Letter of Intent, we set the goal of improving the collaboration between members. This will enable an even closer cooperation and will facilitate the inclusion of new members.


March 25 – 27 2022

The Munich AIDS and COVID Days bring together the HIV community and science. This year, HIV Outcomes Germany was also part of the event. Three members presented the initiative with the support of the co-sponsors in an interactive discussion format. A lively discussion about the goals and ideas of the initiative emerged with the broadly mixed audience. Together, various aspects of HIV care in Germany were discussed, for example, further opportunities for education, especially of young people.


March 1 2022

#wekeepgoing: Under this motto, HIV Outcomes Germany met with Tessa Ganserer (Alliance 90 / The Greens), one of the first trans women in the German Bundestag. Numerous key issues were discussed, including HIV-related stigma and discrimination, the global fight against HIV and AIDS, the health-related quality of life of older people living with HIV, and the lack of scientific research on the health of transgender people. Much remains to be done in the new legislative session! #hivoutcomesmeetspoliticians


December 1 2021

German steering group member Jens Ahrens joined HIV Outcomes Europe for the World AIDS Day event on December 1. He discussed HRQoL and how the quality of care for people living with HIV can be increased in the future.


November 2021

HIV Outcomes Germany started to reach out to new MPs to keep HIV on the political agenda for the coming term. The secretariat has already contacted MPs who have proven their expertise in HIV and AIDS. The initiative is planning to meet many members of the German Parliament to spread our key messages from the position paper in 2022. 


Autumn 2021

Autumn was dominated by the 2021 Federal Election and its aftermath. HIV Outcomes Germany monitored the government’s formation and analysed the coalition agreement. Additionally, a position paper consisting of five key demands was drafted for the new legislative term.


July 18 – 21 2021

At the International AIDS Society Conference on HIV Science, the initiative will discuss the consequences of Covid-19 on the quality of life of people living with HIV at a satellite symposium together with the European partners.


July 9 2021

HIV Outcomes puts HIV on the political agenda! Before the parliamentary election, HIV Outcomes Germany spoke to Kordula Schulz-Asche (Alliance 90 / The Greens), Member of the Health Committee, about challenges for people living with or working in the field of HIV during COVID-19 Pandemic. Ongoing discrimination and stigmatization of people with HIV were central topics of the conversation. The overall consensus was clear: Political adjustments must be made. #hivoutcomesmeetspoliticians


March 25-27 2021

HIV Outcomes engaged in a dialogue with the HIV community and science at the German-Austrian AIDS Congress (DÖAK). With a booth, a campfire as well as a poster, the initiative was able to discuss challenges and ideas “beyond viral suppression” with the community.


February 18 2021

HIV Outcomes Germany is growing: At the second workshop, two new participants were welcomed to the initiative and the organizational structure was discussed. Furthermore, the initiative had a first exchange with political actors and was able to discuss how HIV/AIDS remains on the political agenda with Andrew Ullmann (Free Democratic Party), Member of the German Parliament and Chairman of the Health Committee. #hivoutcomesmeetspoliticians


December 1 2020

HIV Outcomes Germany introduces itself! On World AIDS Day, the initiative aims to raise awareness for the topic of HIV/AIDS. For this purpose, a short video has been published on social media. Message: #wekeepgoing


September 21 2020

During the first workshop in September, the working group engaged in intense discussions to specify and agree upon the main goals and thematic priorities of the initiative.

Results:

  • In Germany, HIV Outcomes will for now focus on the parallels between HIV and COVID-19 and what lessons we can learn from them.
  • Studies have shown that stigma and discrimination against people with HIV are possible causes of mental illness, which is why mental health will be another key topic.
  • Moreover, the initiative will also focus on digitalization of the health care system and the associated opportunities and challenges that exist for people with HIV.

July – August 2020

Following the successful launch, the German secretariat called each participant individually to discuss key issues and identify target groups. Based on these conversations, a first draft of a consensus paper was prepared. What were the major themes of the draft? Mental Health and Digitalization.


June 18 2020

HIV Outcomes Germany is launched! For the first time, the initiative comes together for a digital kick-off meeting.

Contact

Germany FIPRA – Secretariat HIV Outcomes
Michel Schröder
Miller & Meier Consulting GmbH
Französische Straße 55, 10117 Berlin
Phone: +49 30 770 194 247
E-Mail: mschroeder@miller-meier.de

This initiative is enabled by sponsorship provided by Gilead Sciences and ViiV Healthcare.