Introducing HIV Outcomes Germany

DEUTSCH | ENGLISH

HIV Outcomes Germany consists of the following members (not yet constituted):

  • Jens Ahrens, Deutsches Expertennetzwerk HIV/Hepatitis e.V.
  • Prof. Dr. Georg Behrens, MH Hannover
  • Jochen Jakobs, ViiV Healthcare
  • Dr. Sebastian Noe, MVZ Karlsplatz München
  • Annette Piecha, Deutsches Expertennetzwerk HIV/Hepatitis e.V.
  • Dr. Katja Römer, dagnä e.V.
  • Siegfried Schwarze, Projekt Information e.V.
  • Dr. Christoph Spinner, TU München
  • Prof. Dr. Hendrik Streeck, UK Bonn
  • Christian Thams, Gilead Sciences
  • Alexandra Wigger, ViiV Healthcare
  • Florian Winkler-Ohm, SchwuZ

Activities & Milestones

Since its launch in 2020, HIV Outcomes Germany brings together medical professionals, patient organisations, researchers and industry to improve the health-related quality of life of people living with HIV in Germany. The initiative raises awareness and advocates for policy change in five key areas: Stigma and discrimination, testing and diagnosis, long-term health and aging, digitalization as well as mental health. The ultimate goal is the implementation of the recommendations and vision of HIV Outcomes Europe in Germany.

July 9, 2021

HIV Outcomes puts HIV on the political agenda! Before the parliamentary election, HIV Outcomes Germany spoke to Kordula Schulz-Asche (Alliance 90 / The Greens), Member of the Health Committee, about challenges for people living with or working in the field of HIV during Corona. Ongoing discrimination and stigmatization of people with HIV were central topics of the conversation. The overall consensus was clear: Political adjustments must be made. #hivoutcomesmeetspoliticians


Autumn 2021

Focus on the German Federal Election! The initiative would like to continue the cross-party exchange with MPs and hold further discussions, as meaningful change can often only be achieved with political support!


July 18 – 21, 2021

At the International AIDS Society Conference on HIV Science, the initiative will discuss the consequences of Covid-19 on the quality of life of people living with HIV at a satellite symposium together with the European partners.


March 25-27, 2021

HIV Outcomes engaged in a dialogue with the HIV community and science at the German-Austrian AIDS Congress (DÖAK). With a booth, a campfire as well as a poster, the initiative was able to discuss challenges and ideas “beyond viral suppression” with the community.


February 18, 2021

HIV Outcomes Germany is growing: At the second workshop, two new participants were welcomed to the initiative and the organizational structure was discussed. Furthermore, the initiative had a first exchange with political actors and was able to discuss how HIV/AIDS remains on the political agenda with Andrew Ullmann (Free Democratic Party), Member of the German Parliament and Chairman of the Health Committee. #hivoutcomesmeetspoliticians


December 01, 2020

HIV Outcomes Germany introduces itself! On World AIDS Day, the initiative aims to raise awareness for the topic of HIV/AIDS. For this purpose, a short video has been published on social media. Message: #wekeepgoing


September 21, 2020

During the first workshop in September, the working group engaged in intense discussions to specify and agree upon the main goals and thematic priorities of the initiative.

Results:

  • In Germany, HIV Outcomes will for now focus on the parallels between HIV and COVID-19 and what lessons we can learn from them.
  • Studies have shown that stigma and discrimination against people with HIV are possible causes of mental illness, which is why mental health will be another key topic.
  • Moreover, the initiative will also focus on digitalization of the health care system and the associated opportunities and challenges that exist for people with HIV.

July – August 2020

Following the successful launch, the German secretariat called each participant individually to discuss key issues and identify target groups. Based on these conversations, a first draft of a consensus paper was prepared. What were the major themes of the draft? Mental Health and Digitalization.


June 18, 2020

HIV Outcomes Germany is launched! For the first time, the initiative comes together for a digital kick-off meeting.

Contact

Germany FIPRA – Secretariat HIV Outcomes
Kathrin Krumm
Miller & Meier Consulting GmbH
Französische Straße 55, 10117 Berlin
Phone: +49 30 288 765 949
E-Mail: kkrumm@miller-meier.de

This initiative is enabled by sponsorship provided by Gilead Sciences and ViiV Healthcare.