Introducing HIV Outcomes Romania

Living with HIV – Testimonials

HIV special story in Romania and HIV Outcomes Romania activity – Iulian Petre, UNOPA – Member of HIV Outcomes Romania

HIV Undetectable = Untransmissible – Dr Mariana Mardarescu, INBI – Member of HIV Outcomes Romania

World AIDS Day – Stella Kyriakides – European Commissioner for Health and Food Safety

HIV Outcomes Romania comprises the following members:

  • Prof. Adrian Streinu-Cercel – Romanian Senator; Member of the Romanian Academy for Medical Sciences; Professor, PH.D. Coordinator and President of the University Senate, University of Medicine and Pharmacy “Carol Davila” Bucharest; former General Manager of the National Institute of Infectious Diseases “Prof. Dr. Matei Balş” and former Secretary of State for the Romanian Ministry of Public Health.
  • Dr. Florentina Dumitrescu – Doctor, Regional Treatment Center, Craiova.
  • Dr. Mariana Mărdărescu – Medical Doctor and Head of Pediatric Section, National Institute of Infectious Diseases “Prof. Dr. Matei Balş”.
  • Dr. Roxana-Carmen Cernat – Doctor, Regional Treatment Center, Constanta County.
  • Dr. Teodora Moisil – Doctor, Regional Tratment Center, Timisoara County.
  • Ana Maria Schweitzer – Manager, Baylor Black Sea Foundation (NGO of public interest, providing prevention, treatment, and care for people affected by infectious and chronic diseases, namely viral hepatitis, HIV infection, and diabetes).
  • Daniel Scoarta – Member of the National Union of Organisations of People living by HIV/AIDS (UNOPA).
  • Daniela Biris – Psychologist, Regional Treatment Center, Timisoara County.
  • Ioan Petre – Consultant for Coalition of Patients Organizations with Chronic Diseases – COPAC – NGO active on human rights, people living with HIV/HCV/TB, prevention, advocacy and harm reduction.
  • Nicoleta Dascălu – Project Manager at The AIDS Romanian Association (ARAS) – NGO active in educating the population about the danger posed by AIDS, the means to prevent HIV infection and provide material and psychological support to people living with HIV and their families.‎
  • Iulian Petre – Manager at the National Union of Organisations of People living by HIV/AIDS (UNOPA) – NGO comprising 22 organisations of people living with HIV/AIDS, advocating to promote and protect the rights of people living with HIV in Romania.
  • Tudor Ciubotaru – Director, Government Affairs & Public Affairs, Romania and European Distributor Markets, Gilead (GSR) Sciences SRL Romania
  • Dr Mariuca Apopei – Medical Advisor, Elpharma Romania – on behalf of ViiV.

Activities & Milestones

HIV Outcomes Romania was launched in 2019, with the aim to road-test the HIV Outcomes recommendations and vision to improve the health-related quality of life of people living with HIV in a unique context. Romania has in fact a large group of people, who were infected with HIV as children at hospitals in the late 1980s-early 1990s. Those people have been living with HIV for approximately 30 years. Road-testing the HIV Outcomes recommendations in Romania will help make an impact in a country with considerable unmet health needs and a challenging policy and budgetary environment. 

April 2022

HIV Outcomes Romania provided recommendation on HRQoL at the public consultation on the new National Healthcare Strategy 2022-2030 organised by the Ministry of Health.  

First Operational Workshop of the HIV Outcomes Romania with the participation of the European Secretariat and the in-country initiatives. 

March 2022

Production and translation into English of three videos capturing the work of HIV Outcomes Romania published on the HIV Outcomes website, YouTube and LinkedIn

Collection of intelligence regarding the needs of Ukrainian refugees living with HIV at refugee camps.

January – February 2022

HIV Outcomes Romania provided input on HRQoL, stigma, and discrimination in healthcare settings, and comorbidities’ management to:

  • National HIV Action Plan;
  • UN indicators on physical and mental health, in relation to the Sustainable Development Goal 3 (SDG 3), to address discrimination based on sexual orientation and gender identity, on the evaluation report by the Independent Expert of the United Nations High Commissioner for Human Rights (IE SOGI).

December 2021

The Chair of HIV Outcomes Romania, Prof Dr. Adrian Streinu Cercel, participated in the IAS satellite event  “Supporting health-related quality of life for people living with HIV: Lessons and learnings from the COVID-19 pandemic”.

Virtual roundtable discussion with Board members and HIV communities and representatives “Nothing about us, without us – Delivering health-related quality of life for people living with HIV”, focused on the involvement of people living with HIV in shaping public policies in Romania.

November 2021

Translation into Romanian and dissemination of the HIV Outcomes Advocacy Toolbox.

October 2021

HIV Outcomes Romania continued to advocate for the inclusion of HRQoL in the HIV-related legislation and provided input to the Parliamentary review of the national health and HIV-related legislation.

August 2021

Creation of the campaign Undetectable = Untransmissible to raise awareness of HIV. The campaign received institutional support from the National Council for Combating Discrimination to become a message of public interest. 

July – December 2021

HIV Outcomes Romania provided input on the 2030 National Strategy for Sustainable Development calling for the UNAIDS target proposals and national indicators to measure the HRQoL of people living with HIV.

May 2021

A study on the quality of life of people living with HIV in Romania was launched. The study aimed to explore the factors that influence the long-term wellbeing and overall quality of life of different population groups living by HIV in Romania.  

April – November 2021

Five new members joined the Romanian Steering Committee: 

  • Daniel Scoarta – member of UNOPA
  • Dr Teodora Moisil- Regional HIV Treatment Center Timisoara
  • Ana Maria Schweitzer – manager, Baylor Foundation
  • Dr Florentina Dumitrescu- Regional HIV Treatment Center Craiova
  • Daniela Biris- Psychologist – Regional HIV Treatment Center Timisoara.

February 2021

The virtual event on “Improving the well-being and quality of life of people living with HIV by combating stigma and discrimination” took place on 22 February 2021. The event was organised as an open forum, with the aim to stimulate a creative exchange among different stakeholders, including: 

  • Representatives of the Romanian Presidency.
  • Government representatives.
  • Representatives from Health, Education, Labour and Social Protection Ministries.
  • Members of Parliament – three Senators and two members of the Lower House.
  • Patients and patient organisations.
  • Clinicians active in HIV/AIDS treatment and other specialisations (e.g. ER units, obstetrics-gynecology, dentistry, surgery, etc.)
  • NGOs.
  • Researchers.
  • Psychologists.

December 2020

Meeting of the Romanian Steering Group to approve: 

  • The shortlisted candidates for the development of a study on the quality of life of people living with HIV in Romania.
  • The 2021 Work Plan of the initiative.
  • The concept for an event on “Improving the well-being and quality of life of people living with HIV by combating stigma and discrimination”.

March – September 2020

The Romanian Secretariat held bilateral discussions with Members of the Romanian Steering Group to discuss key issues, including the impact of COVID-19 pandemic on people living with HIV, caretakers and clinicians. Building on these conversations, the initiative had exchanges with political stakeholders and members of the government on the impact of the COVID 19 pandemic on the access to treatment and management of comorbidities for people living with HIV.

October 2019

Translation into Romanian and publication of the HIV Outcomes Recommendations. 

June 2019

First meeting of the HIV Outcomes Romania Steering Group and approval of the first national Work Plan.

January 2019

HIV Outcomes Romania Kick off meeting with the participation of the European Steering Group Members and potential Romanian Steering Group Members.

This initiative is enabled by sponsorship provided by Gilead Sciences and ViiV Healthcare.