Introducing HIV Outcomes Romania
Living with HIV – Testimonials
HIV special story in Romania and HIV Outcomes Romania activity – Iulian Petre, UNOPA – Member of HIV Outcomes Romania
HIV Undetectable = Untransmissible – Dr Mariana Mardarescu, INBI – Member of HIV Outcomes Romania
World AIDS Day – Stella Kyriakides – European Commissioner for Health and Food Safety
HIV Outcomes Romania comprises the following members:
- Prof. Adrian Streinu-Cercel – Romanian Senator; Member of the Romanian Academy for Medical Sciences; Professor, PH.D. Coordinator and President of the University Senate, University of Medicine and Pharmacy “Carol Davila” Bucharest; former General Manager of the National Institute of Infectious Diseases “Prof. Dr. Matei Balş” and former Secretary of State for the Romanian Ministry of Public Health.
- Dr. Mariana Mărdărescu – Medical Doctor and Head of Pediatric Section, National Institute of Infectious Diseases “Prof. Dr. Matei Balş”.
- Dr. Roxana-Carmen Cernat – Doctor, Regional Treatment Center, Constanta County.
- Ioan Petre – Program Coordinator at Carusel (NGO specialised in the provision of social and medical services to vulnerable populations).
- Nicoleta Dascălu – Project Manager at The AIDS Romanian Association (ARAS) (NGO active in educating the population about the danger posed by AIDS, the means to prevent HIV infection and provide material and psychological support to people living with HIV and their families).
- Iulian Petre – Manager at the National Union of Organisations of People living by HIV/AIDS (UNOPA) (NGO comprising 22 organisations of people living with HIV/AIDS, advocating to promote and protect the rights of people living with HIV in Romania.
- Tudor Ciubotaru – Director, Government Affairs & Public Affairs, Romania – Gilead (GSR) Sciences SRL.
- Mihai Antonescu – ViiV Healthcare.
Activities & Milestones
HIV Outcomes Romania was launched in 2019, with the aim to road-test the HIV Outcomes recommendations and vision to improve the health-related quality of life of people living with HIV in a unique context. Romania has in fact a large group of people, who were infected with HIV as children at hospitals in the late 1980s-early 1990s. Those people have been living with HIV for approximately 30 years. Road-testing the HIV Outcomes recommendations in Romania will help make an impact in a country with considerable unmet health needs and a challenging policy and budgetary environment.
A study on the quality of life of people living with HIV in Romania was launched. The study aimed to explore the factors that influence the long-term wellbeing and overall quality of life of different population groups living by HIV in Romania.
The virtual event on “Improving the well-being and quality of life of people living with HIV by combating stigma and discrimination” took place on 22 February 2021. The event was organised as an open forum, with the aim to stimulate a creative exchange among different stakeholders, including:
- Representatives of the Romanian Presidency.
- Government representatives.
- Representatives from Health, Education, Labour and Social Protection Ministries.
- Members of Parliament – three Senators and two members of the Lower House.
- Patients and patient organisations.
- Clinicians active in HIV/AIDS treatment and other specialisations (e.g. ER units, obstetrics-gynecology, dentistry, surgery, etc.)
Meeting of the Romanian Steering Group to approve:
- The shortlisted candidates for the development of a study on the quality of life of people living with HIV in Romania.
- The 2021 Work Plan of the initiative.
- The concept for an event on “Improving the well-being and quality of life of people living with HIV by combating stigma and discrimination”.
March – September 2020
The Romanian Secretariat held bilateral discussions with Members of the Romanian Steering Group to discuss key issues, including the impact of COVID-19 pandemic on people living with HIV, caretakers and clinicians. Building on these conversations, the initiative had exchanges with political stakeholders and members of the government on the impact of the COVID 19 pandemic on the access to treatment and management of comorbidities for people living with HIV.
Translation into Romanian and publication of the HIV Outcomes Recommendations.
First meeting of the HIV Outcomes Romania Steering Group and approval of the first national Work Plan.
HIV Outcomes Romania Kick off meeting with the participation of the European Steering Group Members and potential Romanian Steering Group Members.